SOCIAL FAMILY SUPPORT FOR CHILDREN WITH SPECIAL NEEDS IN
SPECIAL SCHOOL CARE FOR NAGARI CHILDREN
AKABILURU DISTRICT
State Islamic Institute (IAIN) Bukittinggi, Indonesia
saputrikelana25@gmail.com
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ABSTRACT |
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This research was conducted on the basis of the discovery
of phenomena that exist in the Nagari Children's Care Special School, Akabiluru District which shows that family
social support for children with special needs is still
lacking such as emotional support. The purpose of this
research is to find out
Family Social Support for Children with Needs at
the Nagari Children's Care Special School, Akabiluru District. This research is descriptive qualitative. Informants in this study consist of key
informants parents of children with
special needs and supporting informants, namely one mentally retarded child and one autistic
child. Data were collected
by conducting observation and interview guidelines. The
data processing technique
used descriptive qualitative analysis and the technique
of testing the validity of the
data was by data triangulation. Based on the results of research
at the Nagari Children's Care Special School, Akabiluru District, family social support for children
with special needs is emotional
support, informative support, instrumental support, and assessment/award support. |
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Keywords: Family Social Support, Children with Special Needs |
*Correspondent
Author : Saputri Kelana
Email : saputrikelana25@gmail.com
INTRODUCTION
Children are a gift from
Allah SWT which is entrusted to parents. Children should be cared for,
nurtured and educated to be strong and productive individuals (Arjoni, 2017). Children are born
with the potential to have the ability to develop well, but they may not fully
do it themselves (Kamal, 2016) . The birth of children with special
needs that distinguish them from children in general, the presence of children
with special needs in the family will change a lot in the family, especially
related to emotions (Sulastina & Rohmatun, 2018).
Children with special
needs are children who experience developmental disorders, disorders, or social
so that they require special education services according to the conditions
they experience (Ali, Gazadinda, & Rahma, 2020). Children with
special needs require special treatment because of developmental disorders and
abnormalities experienced by children. In relation to the term disability,
children with special needs are children who have limitations in one of several
abilities, whether they are visually impaired, physically disabled, mentally
retarded, deaf, as well as psychological such as autism and ADHD.[5]
The cause of children
with special needs is the occurrence of abnormalities in the child during the
womb or birth process caused by internal factors, namely genetic and hereditary
factors, or external factors, namely mothers who experience bleeding due to
colliding with their womb or falling during pregnancy, or
eating food or drugs that injure them. fetus due to fetal malnutrition (Desiningrum, 2017).
Children with special
needs have the right to grow and develop in the midst of
families, communities and nations. Children with special needs have the
right to get support from those closest to them, such as parents, siblings,
relatives, or people around them. Allah SWT has a noble purpose with the
presence of children with special needs that parents who have children with
special needs, and obedient and faithful humans must believe in the letter Al-Munafiqun verse 9, namely:
يَا
أَيُّهَا
الَّذِينَ
آمَنُوا لَا
تُلْهِكُمْ
أَمْوَالُكُمْ
وَلَا
أَوْلَادُكُمْ
عَن ذِكْرِ
اللَّـهِ ۚ
وَمَن
يَفْعَلْ ذَٰلِكَ
فَأُولَـٰئِكَ
هُمُ
الْخَاسِرُونَ
﴿٩﴾
Meaning: " O
you who believe, do not you and your children neglect you from the remembrance
of Allah. Whoever does this, they are the losers (Surah Al Munafiqun 63:9).[7]
From the above opinion
it can be concluded that the presence of children is the dream of every
parent. It is appropriate for a human being to be grateful for what Allah
SWT wills. Be grateful for what Allah SWT has given by accepting the
presence of children regardless of the circumstances and raising them with
love. Having a child with special needs is a challenge for parents and
families to give more attention.
Ahmad Mustafa Al-Marghi explained that every human being has a nature that
tends to the teachings of monotheism. The tendency of a child will
continue to grow stronger if it is always nurtured and nurtured by parents
since the child is born, but on the contrary the nature that already exists in
the child will gradually disappear if it is not nurtured and guided towards a
more perfect one.[8]
In this case, parents
play an important role in children's achievement in school, because parents
have the main role and responsibility for the care and protection of children
from infancy to adolescence. All parents have a noble responsibility to
provide physical, spiritual and mental
education. This is the goal of parents to provide guarantees in the
development of their children. The attention of parents in educating
children in the family environment is very important, because the family
environment is the best place to start education.[9]
Education is an activity
to achieve the realization of a complete human being that lasts a lifetime.[10] Inclusive education is an
education, in which students with special needs are admitted to regular schools
located in the area where they live and receive various support and educational
services according to their needs.[11]
The purpose of
special/inclusive education is to provide the widest possible opportunity for
all children who have physical, emotional, mental and
social disabilities or have the potential for intelligence and special talents
to obtain quality education according to their needs and abilities and to
realize the implementation of education that respects diversity and
non-discriminatory for all education. By educating children with special needs they can understand and accept diversity and
individual differences.[12]
Based on the Regulation
of the Minister of State for Women's Empowerment and Child Protection of the
Republic of Indonesia number 10 of 2011 concerning policies for handling
children with special needs, it is stated that:
Children with special
needs require special handling. Because handling children with special
needs is not only about physical/health and psychological conditions, it is also necessary to understand their potential so that
they can be developed as optimally as possible. This includes choosing the
form of education, the right to live in society, and handling it in daily life,
so that they can become citizens who are able to live independently, be responsible
and participate in development.[13]
From the description
above, it can be concluded that children with special needs need attention from
their families (parents, siblings, relatives and the
community), guidance, care and education. With education divided into two
parts, namely general education and special/inclusive education, general
education can be taken by anyone and from various circles and groups while
special education is for children with special needs. With special
education, children with special needs can grow and develop, and hone their
abilities according to their interests and potential.
The number of children
with special needs in Indonesia from year to year continues to
increase. The United Nations estimates that at least 10 percent of
school-age children have special needs. In Indonesia, the number of
school-age children, namely 5-14 years, is 42.8 million people. If you
follow the estimates, it is estimated that there are approximately 4.2
Indonesian children with special needs. Other data from the Central Statistics
Agency (BPS), the number of children with special needs in Indonesia in 2017
reached 1.6 children and will continue to increase every year.[14]
Social support that can
be obtained from family, friends, community, organizations. Individuals
who get social support believe that they feel loved, valued, and part of a
social network. Social support refers to the actions shown by
others. In addition, social support also refers to the perception that
individuals feel comfort, care, and assistance when help is needed.[15] Family social support can
improve good well-being including giving encouragement and attention so that it
can prevent anxiety, increase self-esteem, and prevent psychological disorders.[16]
Support and acceptance
from parents and other family members will provide energy and decisions in
children which will give energy and confidence in children with special needs
to try to learn and try new things related to life skills and in the end can
achieve according to their abilities, achievement is a collection of the final
results of a job that has been done, the assessment of the achievement of
children with special needs can be seen from the social emotional aspect,
academic competence and behavior.[17]
The social support
obtained by children with special needs shows that parents and families have
provided 4 types of support (emotional support, appreciation support,
instrumental support, information support).[18] Of the four supports, it can be
seen that the emotional support factor is more (mostly done). Seeing the
condition of children who need more emotional support than normal
children. Children with special needs receive good support from parents or
the environment around them, children can develop better according to their
abilities. The attitude of parents, family, peers, school friends, and
society in general is very influential on the formation of the self-concept of
children with special needs.
Table. 1
Types of Children with
Special Needs in Special Schools
Caring for Nagari
Children, Akabiluru District
|
No |
Types of Children with Special
Needs |
Amount |
|
1. |
Mentally disabled |
27 people |
|
2. |
Autism |
6 people |
|
Total Number |
33 people |
|
Based on the table above, there are 33 children with special needs at the
Nagari Special Care School for Children, there are 27 mentally retarded
children with 8 girls and 19 boys. Furthermore, 6 autistic children with
male gender.
Based on initial
observations on Monday, September 14, 2020, which the author conducted at the
Nagari Children's Care Special School, Akabiluru
District, the author saw 7 children who came to school with 3 girls and 4
boys. Children with special needs who come to their school get social
support from their parents such as attention and enthusiasm. Parents give
encouragement to children so that children study diligently and the form of
attention parents give is parents prepare food supplies, take children to
school and pick up children from school.[19]
Based on the results of
an interview on Tuesday, February 2, 2021 with one of the parents of a mentally
retarded child from Nagari Suayan that the child
cannot be informed and does not want to listen to the advice given and fights
against the parents if advised so that the parents just let it go, and the
child does not want to go to school and do the assignments given even though
all school supplies and pocket money are given.[20]
Based on an interview
with the principal on Monday, May 24, 2021 at the
Nagari Children's Care Special School, Akabiluru
District, it was stated that some children lacked family support to provide
encouragement, enthusiasm and attention. Children do not want to go to
school and prefer to go out to play with their friends. Lack of attention
and enthusiasm by parents causes children to not want to go to school and there
is one child who becomes a freight forwarder in the market due to lack of
parental attention to children so that children are not taken care of properly.[21]
Based on the description
above, the authors are interested in conducting further research on
" Family Social Support for Children with Special Needs at the
Special School for Caring for Children in Nagari, Akabiluru
District "
METHOD
This research is a field
that is descriptive qualitative, qualitative research is research that aims to
understand the social reality, which is to see the world from what it is, not
the world should be the properties open minded , kerenanya
conduct qualitative research properly means have had a window for understand
the world of psychology and social reality.
Qualitative research is
carried out under natural conditions and is inventive in nature. In
qualitative research, is a key instrument. Therefore, research must have
broad theory and insight so that it can ask questions, analyze, and construct
objects under study to be clearer. This research emphasizes more on
meaning and value bound. Qualitative research is used when the problem is
not clear, to find out hidden meanings, to understand social interactions, to
develop theories, to ensure the validity of data, and to examine the history of
development.[22]
Qualitative research can
be interpreted as research that produces descriptive data on spoken and written
words, and observable behavior, which describes Family Social Support for
Children with Special Needs at the Special School for Child Care in Nagari, Akabiluru District.[23]
The location of this
research was carried out at the Nagari Children's Care Special School, Akabiluru District, Lima Puluh
Kota Regency, as for the reason the author chose this location as the object of
research based on phenomena or symptoms that have long been observed and become
problems to be studied related to social support families for children with
special needs at the Nagari Children's Care Special School, Akabiluru
District.
RESULTS AND DISCUSSION
In this chapter the
author will describe the results of the research that the author has done through
interviews and observations to key informants, namely 2 parents of children
with special needs and the supporting informants are 2 children with special
needs with 2 types of special needs namely mentally retarded children and
autistic children and teachers in the Nagari Children's Care Special School, Akabiluru District.
To describe the result
data. The author is guided by the results of observations and interviews
that the authors did to informants. Interviews that the author did by
asking some questions. The author makes several questions based on several
sub-indicators which according to the author are parts that can represent and
provide information as well as to answer questions about Family Social Support
for Children with Special Needs at the Nagari Children's Care Special School, Akabiluru District.
A. Emotional Support
Emotional support is that everyone definitely needs
affectionate help from others, this support is in the form of sympathetic and
empathetic support, love and trust, and attention. Thus, a person who is
facing a problem feels that he is not carrying his own burden but there are
still others who pay attention, listen to all his complaints, sympathize or
empathize with the problems he faces.[24]
Based on the results of the author's observations on June 12, 2021, parents
provide encouragement when children with special needs come to school so that
children with special needs feel happy when they are at school and teachers at
school teach with care and affection. Children with special needs get
attention from parents by taking them to school and waiting for them to come
home from school so that children with special needs feel excited to learn.[25]
Based on the results of an interview with Ibuk E
as the parent of RM, a child with special needs for mental retardation on June
15, 2021, as follows:
Mrs. E replied:
"As a parent of RM, I always give more attention so that my child can
develop like normal children in general, the form of attention I give is to
provide motivation so that my child can achieve his potential and always
accompany him. With the busy work I do, I still take the time to pay
attention by teaching life skills according to their interests and potential so
that children can be more independent, I treat children well and lovingly, I
always give advice to children if they make mistakes by lecturing and give a
little punishment like not allowed to go out. I always ask what the child
wants and always try to give it if it is something that is good and beneficial
for him.”[26]
Based on the results of an interview with Mr. ANR as the parent of a child
with special needs autism on June 15, 2021, as follows:
Mr ANR replied:
"I am a parent from AN who always pays attention, the form of
attention I give is that I always give my best for their development by always
checking in to the hospital every 2 weeks with expert doctor handling, sending
children to inclusive schools and accepting children as they are by thinking
about treatment. what is best for the child. With busy work, I still take
the time to see the development of children and teach them with skills that are
in accordance with their interests and potential so that children can be
independent and not dependent on others. Whenever a child does an
inappropriate action or makes a mistake I will give
rather firm advice so that the child can understand what I am saying and not
repeat the inappropriate behavior and not make that mistake again. I
always ask him what he wants if he does something that benefits him.”[27]
In line with this, the author also conducted interviews with teachers at
the Nagari Children's Care Special School, Akabiluru
District on June 11, 2021, as follows:
Ms Guru ME replied:
“I am a teacher at the Nagari Children's Extraordinary School who always
pays attention to all children who come to school without discriminating
between children. I always teach children according to their individual
needs, so that they can develop their potential to the maximum and teach
children to live independently so that children do not depend on
others. Every child who makes a mistake will be given advice and if the
child cannot be advised they will be punished so that they know what they did
was wrong.”[28]
Based on the results of the interview with Mrs. E, Mr. ANR and ME teacher
always give more attention to children's development. With busy work,
parents still take the time to pay attention by teaching skills according to
their interests and potential so that children can live more independently and children can be like children in
general.
Reinforced by this, the emotional support that children get is in the form
of love, attention, trust, sympathy, empathy and
appreciation. Thus the child feels alone but there are still others who
pay attention, want to listen, sympathize or empathize with him.[29]
B. Informative Support
Informative support is information assistance provided so that it can be
used by someone in tackling the problems at hand, including providing advice,
direction, ideas or other information needed and this information
can be conveyed to other people who may be facing the same or almost the same
problem. same.[30]
Based on observations made by researchers on June 12, 2021, parents
who take children to school and give advice to children so that they are not
naughty and do good to friends or teachers and always listen to what the
teacher says while studying. Parents always encourage children to be
enthusiastic about learning.[31]
Based on the results of interviews that the author conducted with Ibu E as
a parent of RM, a child with special needs for mental retardation on June 15,
2021, as follows:
Mrs. E replied:
"I am here as a parent of RM giving advice so that children can be
independent by always providing motivation so that children can do something
useful for themselves. I always give advice to children not to do things
that are not desirable by always providing information so that children always
do things that are good and beneficial for themselves. I always advise the
child to go to school and persuade until the child wants to go and I don't want
to persuade him by saying that I will take him to school and wait until he
comes home from school. For my child's progress, I always tell him to
study and tell him to do the assignments given by the teacher."[32]
Based on the results of an interview with Mr. ANR as the parent of a child
with special needs autism on June 15, 2021, as follows:
Mr ANR replied:
"As a parent from AN, I always give advice to children to be
independent by giving examples such as putting things in their proper place,
for example putting shoes on a shoe rack, I always give advice if the child's
behavior is not appropriate, where my child is always disturbing people who are
not recognized by that I give advice so that children can be more polite and
kind to people who have not been recognized. I always give advice to
children if children don't want to come to school by always persuading them
that if they want to go to school they will be given
pocket money if they don't want to go to school they will not be given pocket
money. I said like finally the child wants to go to school. I always
encourage him to do useful things such as helping him with school assignments
given by the teacher and teaching him skills that can make him more
independent.”[33]
In line with this, the author also conducted interviews with teachers at
the Nagari Children's Care Special School, Akabiluru
District on June 11, 2021, as follows:
Ms Guru ME replied:
"I am a teacher at the Nagari Children's Care School, I always give
advice to all children according to the needs and actions that have been taken
by the child, I will advise the child so that the child can become an
independent child and does not depend on others in carrying out daily
activities such as taking food. themselves and wash the dishes after
eating. For the development of learning, I teach children according to
their respective abilities so that children can develop their potential to the
fullest.”[34]
Based on the results of the interview with Mrs. E, Mr. ANR as a parent of
children with special needs and teachers always give advice to children so that
they can be independent and always provide motivation so that children can do
something useful for themselves. Parents always give advice if the child
does something undesirable or makes a mistake by giving advice the child can
find out if what he is doing is something wrong, parents give advice if the
child does not want to go to school with various suggestions that parents give
so that the child finally wants to go to school. By coming to school
children can be more advanced and can develop their interests and potential as
much as possible.
Strengthened by this, informative support can be provided in the form of
information, advice, real help or an action given by a
familiar social network or obtained because of the presence of the social
network and has emotional benefits or behavioral benefits. Theoretically
the existence of support can reduce the tendency of the emergence of events
that can cause stress and the provision of this support is obtained from close
social relationships, which make individuals feel cared for, valued
and loved. So with informative support, it can be
beneficial for individuals who receive it.[35]
It can be concluded that informative support is the provision of
information, advice, direction, ideas and other
information needed by children so that children can know if what they are doing
is something wrong or right. This support is obtained from close social
relationships, which make children feel cared for, valued
and loved.
C. Instrumental Support
Instrumental support is a form of support in the form of material and is
more in the nature of assistance, donations of funds, money and so on.[36]
Based on observations made by researchers on June 12, 2021, parents fulfill
their children's needs, such as preparing children's favorite foods, giving
pocket money, buying books and other stationery. Parents give
encouragement when children enter class so that children study diligently.[37]
Based on the results of interviews that the author conducted with Ibu E as
a parent of RM, a child with special needs for mental retardation on June 15,
2021, as follows:
Mrs. E replied:
"I'm RM's parent providing his daily needs and school
needs. I always motivate children to study at home by inviting children to
talk from heart to heart, be gentle and give gifts if they want to
learn. I told the children to do the assignments given by the teacher,
with a little help from me. I always tell the children to study and
supervise them while studying so that the children really learn and do the
assignments given by the teacher.[38]
Based on the results of an interview with Mr. ANR as the parent of a child
with special needs autism on June 15, 2021, as follows:
Mr ANR replied:
“As a parent from AN, I provide daily necessities such as nutritious food
clothes and complete school equipment such as the books needed. I always
motivate children by giving gifts if children want to learn and do the
assignments given by the teacher. The way I tell children to study at home
is by doing small jobs such as asking for help to put things in their place and
do something useful by telling my children to do this work, children are more
independent and not dependent on others, persistence in educating and teaching
children, finally children make progress in him. [39]
In line with this, the author also conducted interviews with teachers at
the Nagari Children's Care Special School, Akabiluru
District on June 11, 2021, as follows:
Ms Guru ME replied:
"I am a teacher at the Nagari Children's Care Special School,
complementing the needs of children in the learning process by equipping books
and stationery and a room that makes children motivated to study hard so that
children can develop their talents and interests without being constrained by
unsupported facilities."[40]
The author can conclude from the results of interviews with Mrs.
E, Mr. ANR, and teachers that parents fulfill their children's daily needs
and school needs and teachers complete the needs at
school such as books, stationery and others so that children are diligent in
coming to school. Parents tell children to learn so that children can
develop and be independent, the persistence of parents in telling children to
learn and supervise them in learning finally the child makes progress in
him.
Reinforced by this instrumental support is a form of support in the form of
material and more in the nature of assistance, donations of funds, money and so
on.[41] With instrumental assistance,
children will feel cared for by the people around them and children are
motivated to do something useful for themselves.
D. Rating/Awards Support
Assessment assistance is a form of appreciation given by one person to
another based on the actual condition of the patient. This assessment can
be positive and negative which means a lot for someone, related to family
social support, a very helpful assessment is a positive assessment.[42]
Based on the results of interviews that the author conducted with Ibu E as
a parent of RM, a child with special needs for mental retardation on June 15,
2021, as follows:
Mrs. E replied:
“As a parent of E, I always give praise when my child wants to go to
school and do activities that help me and are useful for him. The praise I
give is like, if a child is diligent in going to school, I always give praise
like saying good things and always praise him with words that motivate him to
go to school. As a parent, I always encourage my children, especially
going to school, so that my child can be like other children in general.”[43]
Based on the results of an interview with Mr. ANR as the parent of a child
with special needs autism on June 15, 2021, as follows:
Mr ANR replied:
“I am a parent from AN, I give praise when my child does something useful
for him. My son at home likes to pick up trash and collect it somewhere and
then burn it. From what he does I give praise by saying good and smart. I
always give praise every time he does something useful so that it makes the
child motivated to do it again. I always give encouragement to children
and provide encouragement for their development so that they can be independent
such as doing daily activities without the help of others”[44]
In line with this, the author also conducted interviews with teachers at
the Nagari Children's Care Special School, Akabiluru
District on June 11, 2021, as follows:
Ms Guru ME replied:
“I am a teacher at the Nagari Special School for Caring for Children, I
give praise to children after doing the tasks I have given them on time and the
tasks given are correct. I also give gifts such as favorite food, by giving
gifts the children will be motivated to work hard. ”[45]
The author can conclude from the results of interviews with Mrs. E, Mr.
ANR, parents of children with special needs and teachers where parents always
give praise for what their children do such as diligently going to school,
doing something that is beneficial for themselves and beneficial for
others. Parents always give encouragement so that children can be like
children in general.
Strengthened by this, assessment support or appreciation is a form of
support in the form of expressions given by parents, teachers and even those
around them in terms of helping children build competence and develop
children's self-esteem. Providing this support can also help individuals
to see the positive aspects that exist in themselves compared to other people's
circumstances which serve as the formation of a sense of self-confidence and
ability and feel valued and can be useful when the individual is under pressure
or problems.[46]
So it can be concluded that assessment support or
appreciation is a form of support in the form of expressions given by parents
or families for what children do to build children's competencies and motivate
children to do positive things that are useful for themselves and others.
In line with this, the author also conducted observations and interviews
with 2 children with special needs with 1 child with mental retardation RM and
1 child with autism AN:
Based on observations made by researchers on June 12, 2021, children with
special needs while at school behaved politely to teachers by shaking hands and
greeting friends with a smile. Children with special needs love being at
school and playing with friends. During the learning process, children
with special needs listen to what the teacher says, every task given by the
teacher, children with special needs are very happy to do it.[47]
Based on interviews with children with special needs for mental retardation
RM on June 16, 2021, as follows:
Children with special needs for mental retardation RM answered:
“Yes, my family always pays attention to me every day and always scolds me
when I go to play with my friends and forgets to come home. My family fulfills
my needs by always preparing my favorite food and buying my school
equipment. Whenever I diligently went to school and did the assignments
given by the teacher, my family always complimented me with kind words and
asked me what I wanted. My family told me to study and supervised me while
studying at home”[48]
Based on interviews with children with special needs autism AN on June 16,
2021, as follows:
Children with special needs autism AN answered:
"Yes, my family is very concerned about me, my family scolds me if I
disturb others, my family fulfills my needs by preparing me a delicious
breakfast and buying new clothes for me, my family praises me when I put things
in their place and clean up the scattered garbage, after what I do my family
praises me by saying the child is smart and diligent. My family told me to
do the assignments given by the teacher and help me with them.
The authors conclude from the results of interviews with children with
mental retardation RM and children with autism AN, children with special needs
get emotional support, informative, instrumental and assessment from the
family, the most support for children with special needs is emotional support
such as attention and affection. Children with special needs get less attention
from their parents because their parents are busy working.
Children with special needs require reasonable treatment, guidance,
direction, learn to socialize and play with friends of their age, in order to have wider opportunities and opportunities to
learn about acceptable behavior patterns, so as not to hinder their social
development. The environment is a basic source of information, is the main
source of fulfillment of needs, and the main interpreter of acceptable social
behavior. For this reason, it is important for the environment, especially
the family, to develop an opportunity structure, a support structure, and a
certain reinforcement structure that allows children to learn to acquire new
behaviors that are acceptable and in line with the norms that develop in their
environment, so as to be able to eliminate social
impacts as a result. a result of his condition.[49]
The author can conclude that children with special needs need social
support from families, especially parents so that children can develop
perfectly so that children can socialize with the environment well like normal
children in general.
CONCLUSION
Based on the problems
that have been raised in the previous chapter, it can be concluded that the
family's social support for children with special needs at the Extraordinary
School for Caring for Children in Nagari District, Akabiluru
District, that the family provides are :
a.
Emotional support, namely parents pay attention to
children's development even though there is a lot of work.
b.
Informative support, namely parents giving advice to
children so that they can be independent and parents providing motivation so
that children can do something useful for themselves.
c.
Instrumental support is that parents fulfill their
children's daily needs and school needs.
Appraisal support or appreciation,
namely parents give praise to children if they do something that is beneficial
for themselves and beneficial for others.
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